Sleep apart from adults by at least six feet (a separate bedroom is recommended) and avoid sexual activity. Free T3. Because of this, people who undergo RAI (meaning those who destroy their thyroid gland) need some type of thyroid hormone replacement. To increase the effectiveness of your upcoming radioactive iodine therapy, you may be prescribed a low iodine diet. I felt well on this level. Iodine is essential for proper function of the thyroid gland, which uses it to make the thyroid hormones. It may sound counterintuitive, but youll understand why you might want to after your procedure. Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. Recently also diagnosed with B12 deficiency and had exhibited most of the symptoms! Radioactive iodine therapy is a systemic and targeted treatment. This was published id a study by dr brunelli fro. Another doctor wants my temp and glucose readings, temp shes ok with once or twice during the day. This can delay subsequent use of radioactive iodine (RAI) therapy because the iodine can compete for uptake. Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. To protect family pets, do not sleep with them for up to 21 days. This content is strictly the opinion of Dr. Westin Childs and is for educational and information purposes only. And how can I persuade my GP to think about more than a TSH reading? Hi doc! The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. Check out my own personal health story. It sounds like you are not being treated adequately. With that in mind, lets jump into what you should expect after your procedure. It may take some trial and error but 80% of patients should approximate normal symptoms over a few months. I have AFib and concerned for my heart about going into the obese stage. What do you recommend? Here are 4 ways you can get more help right now: #1. fresh bread. I go to great lengths to help my users better understand their health; however, the content you see here is not a substitute for medical advice. It is worth pointing out, however, that some other tissues can take up the radioactive iodine such as the beta cells in your pancreas (2) though it isnt clear how much damage exists (if any) in these other cells. Are you thinking about getting radioactive iodine treatment? Will you be able to lead a normal life? Avoid sleeping in the same bed with a pregnant woman, infant, or child for a period of six to 23 days. If radioactive iodine treatment (RAI) is recommended as part of your treatment for Graves disease, hyperthyroidism, or thyroid cancer, you will most likely be given it as an outpatient. Thank You. Answer (1 of 9): I have direct experience with this question because my wife had radioactive iodine treatment for her thyroid cancer and she was supposed to stay away from me and our parrots for 3 days until the radioactive iodine dissipated from her system. 2 Capsules of Thyroid Adrenal Reset Complex daily https://www.restartmed.com/product/thyroid-adrenal-reset-complex/ Im having my RAI tomorrow, and my oncologist said I could go back to work right after. I am 70 years old and I am beginning to worry. For example, uranium has thirty-seven different isotopes, including uranium-235 and uranium-238. relative viscosity of nylon 6; predictive index cognitive assessment answers; why do baseball players spit so much In this procedure, you are intentionally given Iodide, I-131, which emits radiation. Theres no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). I had RAI treatment year 2010, and now I am taking levothyroxine for my hormonal replacement since I am considered as hypothyroid patient. There isnt a specialist in the area of hormone balancing but you can use the resource above to help you find someone who can help you. Most thyroid patients who receive RAI treatment eventually end up hypothyroid and will need to take thyroid hormone replacement drugs indefinitely. My only option for help is the ER which is somewhere I dont want to go with all the crap a going around. I also noticed my left leg larger than my right, so I do a daily measurement at mid calf before I eat or drink anything. I tend to have a high heart rate when I exercise it goes up to 130 righ away then may go as high as 174 at harder workouts. I guess that is my main question because I am willing to do the hard work even if it takes a long time. The real concern with radiation exposure to others in your family has more to do with them coming into contact with actual contamination. You probably will not feel sick during this time, but these precautions are in place to prevent you from accidentally harming another person! One study looked at 157 people and tracked them both before and after their procedure. Now they are suggesting a second treatment at a higher dose. He is now smelling smoke, all the time. Your article is quite interesting. If I take a snack is determined on what my glucose reading was. LH :4.12(1.70-8.60) Radioactive iodine treatment. No, you won't lose your hair after a radioactive iodine treatment. To help prevent thyroid problems that may cause hair problems, it's important to get sufficient dietary . If you havent already then you would probably want to make sure it isnt your other hormones causing these issues. 8.1, Because I began feeling very unhealthy this week further blood tests were done. To further avoid exposing others to radiation:. Dont let this be of major concern to you, though, because in most cases these symptoms can be managed. So, when I get up at Midnight unless I stay up that late, I get a full set of VS plus my glucose readings, and take my Levothyroxine. Fortunately, most patients experience reduced symptoms about a month after treatment. The thyroid is equipped with an active system or "pump" for moving iodine into its cells, where it is concentrated as iodide. But what if you only destroy 30 to 40% of your gland function? They said it was After that they again were having the same symptoms. Findings from a study of patients who received radioactive iodine (RAI) treatment for hyperthyroidism show an association between the dose of treatment . I am going in for radioactive iodine treatment next week and wanted to ask what the best diet plan is that can stop me gaining more weight and help me to reduce my bmi. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. Yup, the pain and numbness Dx CTS, that was put on the back burner for a while, as it wasnt all that troublesome at the moment. . Researchers estimated a 12% increased risk for death from breast cancer and a 5% increased risk for death from . I am in the military, stationed in Fl. I will know more in a few days when he has all the pathology reports back etc. Radioactive iodine ( 131 -I) is a radioactive isotope that is administered orally, in a liquid or capsule form. Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. As so many of you, I too was very unaware of the many causes of having your thyroid removed can have on a person, or the underlying affects that can be caused by the I-131 RAI "therapeutic" radioactive iodine treatment. If your overactive thyroid symptoms persist 6 months after treatment, you may need a second dose. Yes, radiation therapy causes hair loss. Then too, my annual eye exam with dilation is due now, that appointment is upcoming, as well as further dental with my regular dentist now that I have the one impacted and rotted tooth extracted. I had the motto: Ive never met a stranger, they are just the friends I havent met yet. Now, I would rather not talk to anyone, and if Im forced to, I keep it to bare minimum. Catnip works for lighter colors. If it doesnt go away then you have your answer, and if it does go away then you also have your answer. Because of this, people may experience symptoms that may lead them to want to restore whatever thyroid function they can. In some radiation emergencies, usually nuclear power plant accidents, radioactive iodine may be released into the environment and enter the body through breathing or eating it. My biggest fear is loosing my hair, my identity as a woman. If you need to add red tint to your hair, then using carrot juice is one of the easiest ways to do it. Your best bet to AVOID weight gain after RAI is to go into your procedure with a normal weight and to maintain a healthy lifestyle both before and after. Gadolinium-based Contrast Material. That may not be the best decision, but I was becoming very depressed. In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. Because the hair is sealed off during the BK treatment the color might not be able to penetrate into the cuticle. The combination you would want to try if you are post RAI is as follows: Thyroid Daily Essentials 1 packet each day https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/ But you probably at least know a little bit about RAI or you wouldnt be here. Um, Im a night shift nurse on a dementia unit in a nursing home, would you want me taking care of your loved one and have the brain fog, the jitteriness, the irritableness, and depression? is this a side effect of this proceedure. The radiation will pass out of your body through your urine within days. One doctor wants a monitor of pulse five times daily, hes concerned about para thyroid damage. Question. I had RAI treatment 4 weeks ago 29.9 mci due to hyperthyroid hot noduals. This may or may not be important to you based on your age, your gender, and whether or not fertility is something you are interested in but, again, its worth knowing about. All rights reserved. As I said earlier not everyone will necessarily need thyroid medication after they ablate their thyroid. I had RAI in 2010 and was eventually started on a regime of 150 Levothryroxine daily, about 8 weeks post treatment. Its not vain at all! Im so confused my gp has no explanation my hair is falling out I dont eat anything only 3oranges a day and pure fruit juice now I have moderate atrophy on my pancreas and I cant get into a specialist for 1-2 years ., can h explain whats really going on, Please see this article for more information on managing hair loss with thyroid problems: https://www.restartmed.com/thyroid-hair-loss/. 2. But Im not a pretty woman, rather plane, and frumpy. I am worried the medication or added T3 (Armour)is making that happen and it could be hurting my heart. June 7, 2022 . Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. Will it cause you to gain weight? He just does my blood work and adjusts my medicine as needed. These are just a few of the questions that I want to answer in this article. I have since been on a roller coaster ride with the levels fluctuating up and down and not sure why. I had severe and sudden weight loss along with many other troubling symptoms. If you dont have thyroid hormone at all then you risk the chance of coma and death. I dont have another drs appointment till after the holidays. If you will be traveling via airplane or crossing an international border in the period following RAI treatment, you must be provided with a written document from your healthcare provider stating they you have been given a medical treatment involving radiation, as security monitoring devices can detect it. So, I ate what I could and left the rest. I read your list of vitamins all NINE of them, and the only thing I could think of is NO! (Pat). Hives. And I cry at the drop of a hat now too. Can You Get Everything Your Thyroid Needs From Food? Any idea Sir ? Difficulty breathing. Hey! I am already over weight and working on losing it. Along with a pain and numbness in my right hand. Even at this age, I still want to feel and look pretty. To decrease the spread of radioactivity: If possible, use a separate bathroom. You should have your thyroid lab levels tested to see if you need medication. How is this happening? I cannot take anything other than porcine thyroid with rice flour as filler (compounded). Homocysteine down to 11.5, methlymalonic acid down to 257. Are those levels indicative of something going wrong? RAI is a form of radioactive nuclear medication that permanently destroys thyroid tissue. Thank you! Taking a safe nascent iodine supplement may boost hair health and growth in the . I had severe fatigue, sweats etc and they did labs and said my count was high 5.4 and referred me to a civilian provider. Pls.can u explain about this. Mary Shomon is a writer and hormonal health and thyroid advocate. Now the top of my hair is thick and fine and the back of my hair is thick and curly it has a little bit of wire feeling to it. Information for patients administered radioactive iodine (I-131). No social life, have to check VS and glucose readings so often. For my surgery in April, I had a double whammy because a week prior to my surgery I had a molar tooth extracted with surgical dental sedation, and was still on a soft diet, so that was easy, they supplied me with baby food pureed fruits the entire time I was in the hospital. Small amounts of I-131 may also leave through your saliva, sweat and feces. These symptoms are not caused by the procedure itself but rather a consequence of the damage of the thyroid gland and the inability of your body to produce thyroid hormone. and my being a nurse, Im researching and learning all I can. So is there any possible way to lose weight after the Radioactive iodone treatment or is it pretty much an absolute lost cause? If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. This distinction is actually quite important. I HAD MY RAI LAST SEPTEMBER 12, NOW IM ALREADY 2 MONTHS AFYER MY RAI. OR IT WILL BE GIVE ME PROBLEM? It can also help to diagnose and treat some other cancers and conditions. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. What will you really expect after your RAI, side effects Doctors use nuclear medicine to diagnose, evaluate, and treat . Unfortunately, the best way to prevent weight gain after RAI is to go into the procedure at a normal weight. I was exercising and my nutrition intake is organic most fruits, vegetables, meets grass fed etc. I had RAI treatment nearly 2 years ago, and deeply regret it. Thank you. Hyperthyroid Symptoms Checklist Do you Have an Overactive Thyroid? You get it in liquid or pill form. Its been a week after Theres no way for doctors to give you a pill once a day and for that pill to perform the exact same function that your thyroid gland does every minute of every day. The permanency can be seen as a benefit as patients condition will become stable and symptoms can be more easily controlled. The doctor started me on .50 of Synthroid, and taking the first dose my eyes cleared the next day. Rarely, people can feel pain in their neck. To keep my glucose readings at or below 120, the desired reading by my PCP and endocrinologist, I am strict to my vegan/plant based diet, and consume 600 to 800 calories per day. Lowered heart rate. Radiation can be measured around your body and I-131 is present in your skin oil and sweat. You can obviously survive after RAI (otherwise they wouldnt do the procedure) but I want to teach you how to thrive afterward. Abnormal menstrual cycles. I was put on Levothyroxine 175, then when I met my endocrinologist, by that time TSH levels had dropped some so Levothyroxine down to 137. Can you tell me about when I will start medication, or should I be tested first? 5. There's no medical indication to support this as a benefit, and as we mentioned above, excess iodine could cause much bigger problems in the long run. Reds that lean more violet or pink than red are also your best bet. I has RIT approx. So, I need to have an exercise program, vitamin and minerals that may help, food intake regulated to progress to increasing bone mass and weight loss. Here is my story: A year ago I felt a bump on the right side of my neck, so on a routine follow up visit with my PCP for diabetes, I mentioned it to him. Radioactive iodine is a type of iodine that is radioactive - iodine 131 (I-131). I had RAI about 39 years ago and every year Im tested for my TSH level which always seems to be in the normal range. My last blood test shows TSH of 0.02 and I have been asked to go for a follow up test. So, now my doctor told me a list of things to expect over the next while. So I have graves disease but was only diagnosed because I was actually gaining weight. This is usually put into pill form for patients to ingest. It was not and I have been searching for help ever since. It can be an iodine-based material, barium-s ulfate, gadolinium, or saline and air mixture that can be swallowed or injected intravenously. Add black tea to the darker colors above to help the color last longer. I have been on bioidentical hormone replacement therapy for 3 years now and feel somewhat better. 3 weeks after I was taken off of PTU. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. Approximately 90% of people who take radioactive iodine to treat hyperthyroidism need only one dose, although it may take up to 6 months for it to fully work. My health is anything but wonderful. I have Graves disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation. This is more common if you still had a large part of your thyroid gland when you have radioactive iodine treatment. Radioactive iodine is a treatment for papillary and follicular thyroid cancers. It's a highly effective treatment that can cure an overactive thyroid. In the mean time, Im feeling worse about myself than with this original post. Its impossible to predict how any one person will react to any given treatment or operation but the available research suggests that those who go into the procedure overweight are more likely to gain weight afterward. Just have my RAI 2days ago. IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! To lighten hair dyed that is too dark with vitamin c powder, mix together 1 tablespoon of vitamin c powder with 1/2 cup of water. The majority of radioactive iodine, therefore, will be absorbed by any remaining thyroid cells. I have been asked to transport a friend who is having Radioactive Iodine treatment both the day of and a couple days later for her followup scan. Some people, however, may have further trouble after their treatment and suffer from weight gain . Redness, tired eyes, they were seeing double, and not accommodating going from reading to distance. Im hoping I still have some thyroid function based on the fact that he kept lowering my dose of levothyroxine and I can just take your supplements and see some weight loss and feel a bit better. I had never been to endocrinology prior and had no idea about thyroid function. what is the normal amount of time a person needs to be off thyroid supplemental medication before the radioactive iodine treatment is done? Once your thyroid is destroyed, it will no longer work exactly as it used to. It targets VEGFR, BRAF, and RET tyrosine kinase and inhibits the proliferation and angiogenesis of cancer cells. Graves' disease is an autoimmune disease that leads to overactivity of the thyroid gland (hyperthyroidism). I feel horrible. Many clinical studies have also confirmed that weight gain after RAI is a real risk. So for the last 6 mos Ive had to take Levothroxine. Family Medicine 59 years experience. This is an extension of what weve already discussed but its worth spending some time on this specific point. Also learn more about our which will minimize the contamination in your home's isolation room. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? This is of particular concern because this can lead to internal uptake with the radioactive iodine then accumulating in their thyroids. Fact sheet: guidelines for patients receiving radioiodine I-131 treatment. Sign up to receive 20% off your first order. If it was, then you will most likely need to start thyroid medication relatively soon (within the next days to weeks). Thank you for any advice! Doctors made me think it was my only option at the time. I know it Hass to be because it started affecting me as soon as I Started losing weight and before I had been diagnosed. The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. Its normal in the sense that ALL post RAI patients will become hypothyroid but abnormal in the sense that you should NOT feel poorly if you are treated properly. Is it healing and producing its own thyroxine now? I am now living in the Midwest originally from Iowa. Radioactive Iodine. The good news is that not every single person who gets RAI will necessarily gain weight. Additionally, there is also a hypersensitivity reaction. The problem is that once you destroy your thyroid gland you are no longer considered to be hyperthyroid. Hi Dr. Childs, I eat three meals with three snack times. After you get the dose, the scanner checks your entire body for signs of radioactivity. But why would you want to restore thyroid function to your thyroid gland if you had it destroyed because you were already producing too much? that I need doesnt come in one pill so Im taking 100 mcg one day and 75 on the other. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. I must admit I feel like a lab rat at times with all the tests and trials. Because it changes how you should be thinking about your medical condition, it changes the types of natural treatment options that may be available to you, and it changes your treatment. The risk of developing a secondary malignancy due to radioactive iodine therapy . Society of Nuclear Medicine & Molecular Imaging. Radioactive iodine does not produce hair loss. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . If weight loss is your primary goal then I would take a look at my weight loss program here: https://www.restartmed.com/hormone-mastery/. Nevertheless, hair loss can be associated with changing levels of thyroid hormone, and may be experienced by some patients with hypo or hyperthyroidism. The entire goal of the procedure is to put radioactive iodine molecules into your body with the sole purpose of destroying your thyroid gland. In regards to your question, its normal to feel terrible if your TSH is so high, but its not normal for your doctor to try and not optimize this level. Thanks. Flush the toilet twice after using it and wipe it thoroughly to properly get rid of radioactive fluids. To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. I had my RAI 3weeks ago and they did not gave me a pros and con what to expect after. 5PM supper with VS and glucose readings. Some doctor told me to move to the mountains, which I did to avoid toxic chemicals. About 25 years ago they killed my thyroid with radioactive iodine. Iodine is found naturally in some foods and is also added to salt that is labeled as "iodized". Warren Janowitz Radiologist Miami, FL. This comes in the form of a simple hormone medication that you can take each and every day to help normalize your thyroid hormone levels. The average thyroid patient gains about 15 to 20 pounds after RAI/thyroidectomy and this weight is more pronounced if the thyroid patient was overweight prior to the procedure. I have noticed more and more symptoms within the past 5 years That lead me to believe i May have become hypothyroid. What Is a Radioactive Iodine Uptake Test? I am on my own taking more precautions, and going at this as a Haz Mat Tech, Yes, Im that too, as I am a volunteer fire fighter/EMT/ and wear many other hats as well as Haz Mat Tech and am certified in Decon operations. While you cant control this side effect 100%, you can do your best to mitigate (or reduce) any weight gain by going into your procedure at a normal and healthy weight. I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to make me happy again. I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. I would like to try some of your supplements, but not sure which ones I should be looking at. You can get recommended amounts of iodine by eating a variety of foods, including the following: Fish (such as cod and tuna), seaweed, shrimp, and other seafood, which are generally rich in iodine. Since then, each year various GPs have looked at my thyroid function test results, focused solely on the low TSH reading and have now reduced my levothyroxine down to 100 despite my arguments to the contrary. The most common side effect of radioactive iodine treatment immediately after it's been administered is that you will feel very tired for the first few days after the treatment. The thyroid gland relies on iodine to make the hormones necessary for the growth of healthy hair, teeth, and bones. No one told me about any of the particular foods to avoid, I told everyone that I am vegan/plant based diet to control my diabetes and because of many food intolerances to animal proteins. Flush the toilet two times after each use. Because your thyroid has been ablated, you will most likely need thyroid medication for life. My blood work prior was Is it 10 days? And was doing well on a vegan/plant based diet. Youll still need to get those but the supplements can be used in addition to them. You can omit the leptin resistance rx if weight isnt an issue (but it tends to be something that many RAI patients struggle with). I have been battling back and forth with weight gain and hair loss, mild It was also noted my B/P was sometimes Hypertensive, and my glucose readings were starting to climb. So when you take radioactive iodine your body will automatically take it up and store it in the thyroid gland. A single injection is given subcutaneously (i.e. It turns out that thyroid hormone is actually necessary to not only thrive in life but also to survive. Not everyone gains weight after RAI, if thats what you mean by treatment but if you are going to, it will start within 4-6 weeks of the procedure and may continue for several months. You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. If you have any thoughts, I would appreciate those. Thank Sharon. For more details, see our Privacy Policy. Read More. Please help! I would take a look at this article for more information on why people gain weight after RAI: https://www.restartmed.com/hyperthyroidism-weight-gain/, You can also find some tips for weight loss in this article (even though it is more specific to thyroidectomy): https://www.restartmed.com/weight-loss-thyroidectomy/, After the treatments, How fast do the weight begin to add in the pounds.
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